Tag: spoonie life
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When Choosing Is Necessary But Feels Impossible
So many ideas, so little time & energy I admit my adhd has a part to play in this, but I wouldn’t be surprised if you related to it as well: the difficulty that comes with choosing. Choosing which story to focus on. Which character to have as a protagonist. Which plot twist. Which ending.…
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When We Stop Adapting and Show Our Whole Selves
Recognising internalised ableism and claiming the space, access and support we deserve , in writing and in life Today’s topic is a hard one. Because it touches on something so ingrained in anyone with chronic illness that we often don’t notice it until someone points it out: internalised ableism. And once we do receognise it,…
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Surviving the Holidays With Invisible Illness
A guide to help you safely through this month, physically and emotionally The holidays are here again. A time that’s supposed to be joyful, cosy and full of happiness. But for so many of us living with invisible illness the holiday season can feel heavy, lonely, overwhelming and painful. For me it often does, anyway.…
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Why Did You Wait So Long To Seek Help?
The Hidden Cost of Trying to Get Better That Nobody Talks About The question rang around the room. I had expected it, but when the doctor finally asked, it felt like the floor opened beneath me. ‘Why did you wait so long to seek help?’ It’s a question that touches a sore spot for every…
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The Stupid, Beautiful Act of Writing in Pain
When pain takes, writing gives something back Even though my reality is often a lot of sofa sitting/lounging due to my illnesses, it does not stop me from writing. Case in point right now. Am I brave for writing while in pain? Nope. I’m actually pretty stupid for doing so as it makes the pain…
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Permission to Want More
Yearning for joy, peace, and light beyond mere survival I want more for myself. Whatever you have been through or are going through, you are allowed to want more too. I want more for myself out of life. Not out of greed, not out of dissatisfaction, but because I know there is more to life…
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I Hated People Saying “It’s a Choice”, Until It Became True
Not a choice to be happy, but a choice born from grief and healing “Above all, be the heroine of your life, not the victim.” – Nora Ephron, writer. Trust me, I’ve felt pity for myself. I was a victim of my illnesses for decades. I would and still do get defensive whenever anyone comes…
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Resilience Isn’t Always Loud; It Can Often Be Found in Quiet Moments
Finding hope when life is heavy Resilience is not always visible to me. It’s often quiet, steady, invisible. It’s getting up on mornings when my body is tired and my head screams. When it isn’t about conquering or winning, but about continuing. About carrying gentleness and kindness when life is hard. Resilience for me is…
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I Haven’t ‘Overcome’, And That’s Okay
And why real resilience looks different from the viral quotes you see on Instagram I have overcome. I have left that chapter behind me. What doesn’t kill you makes you stronger. I’m going to be honest with you: I loathe these phrases. Loathe. Them. Why? Because of the reality that is my life, my health,…