Tag: invisible illness
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Living A Thousand Lives
Why writing enables us to live the lives chronic illness can’t As a spoonie you often feel like you’re missing out on life. But even before I became ill, when I was around ten years old, I wanted to become an actress. Because – and may I quote myself here -: ‘That way I can…
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The Chronic Grief of Chronic Illness
Sometimes healing isn’t about getting better; it’s about making room for life alongside it Having chronic and mental illness isn’t for the faint of heart. Unfortunately, I am faint of heart. Mine is pieced together after having had it repeatedly smashed to the ground by people I trusted explicitly over the last twenty years. Mine…
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When Choosing Is Necessary But Feels Impossible
So many ideas, so little time & energy I admit my adhd has a part to play in this, but I wouldn’t be surprised if you related to it as well: the difficulty that comes with choosing. Choosing which story to focus on. Which character to have as a protagonist. Which plot twist. Which ending.…
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Where The Spoonie Writer Fights The Economy
How our storytelling goes back centuries where ‘the economy’ does not Productivity. The bane of many a human’s existence. We’ve grown so accustomed to working for our needs that we easily forget that back in the cave days, community was all that mattered and our needs were met without payment. There wasn’t even a word…
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Surviving the Holidays With Invisible Illness
A guide to help you safely through this month, physically and emotionally The holidays are here again. A time that’s supposed to be joyful, cosy and full of happiness. But for so many of us living with invisible illness the holiday season can feel heavy, lonely, overwhelming and painful. For me it often does, anyway.…
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Why Did You Wait So Long To Seek Help?
The Hidden Cost of Trying to Get Better That Nobody Talks About The question rang around the room. I had expected it, but when the doctor finally asked, it felt like the floor opened beneath me. ‘Why did you wait so long to seek help?’ It’s a question that touches a sore spot for every…
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Migraine, Loneliness, and the Miracle Of Connecting
One small act can make such a difference Yesterday I felt so lonely. Today I feel so connected. Nothing has changed in my life from one day to the next, as my migraine is equally horrific. But one thing did change: today I made an effort to reach out. To my birthday-girl friend. To my…
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Permission to Want More
Yearning for joy, peace, and light beyond mere survival I want more for myself. Whatever you have been through or are going through, you are allowed to want more too. I want more for myself out of life. Not out of greed, not out of dissatisfaction, but because I know there is more to life…
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I Hated People Saying “It’s a Choice”, Until It Became True
Not a choice to be happy, but a choice born from grief and healing “Above all, be the heroine of your life, not the victim.” – Nora Ephron, writer. Trust me, I’ve felt pity for myself. I was a victim of my illnesses for decades. I would and still do get defensive whenever anyone comes…